While Huntington's Waited, Sarah Lived
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Real Huntington's Disease Family Stories
Huntington’s disease affects far more than one person. It touches partners, children, carers and entire generations.
Here you can read real Huntington’s disease stories shared by individuals and families living with HD, caring for someone they love, or facing the uncertainty of being at risk of inheriting the gene.
These are honest, personal experiences of the reality behind Huntington’s disease, the challenges, the love, the difficult decisions and the moments that matter.
Every family has a story. Every story deserves to be heard.
Robyn’s Story / Our journey through finding out HD was in the family 💚
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Hannah’s Story
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Diane’s Story
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Corinne’s Story
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My Mum, My Sister and Huntington's / Luke's Story
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Molly's Story of Love, Loss and Family
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Amy's Story / Pregnancy, Huntington's and the Fear of the Unknown
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Charlie's HD Journey
For as long as I can remember, Huntington’s disease has been part of my life.
Our Family and Huntington's Disease: More Than a Diagnosis
My name is Steve, and this is our family.
Your story doesn’t need to be perfectly written. Just tell us about your experience in your own words. Stories are reviewed before publication and we’ll only display your name in the way you choose below.