Steve Lewis
Sarah's husband and full-time carer
I'm Steve. Here's why I started Time to See HD, and why your support matters to families like ours.
A What Is HD campaign
Huntington's Time to Be Seen
Huntington's disease changes entire families, yet it remains almost invisible across mainstream television and radio. It is time that changed.
Why Time to See HD matters
Hear why Steve started the petition and why clinical psychologist and Huntington's disease researcher Sarah Gunn is adding her support.
Sarah Gunn
Clinical psychologist and HD researcher
Sarah adds her voice in support of the petition and greater awareness of Huntington's disease.
Why is Huntington's still hidden?
Other devastating illnesses receive documentaries, news coverage, interviews and carefully researched storylines, and rightly so. Huntington's disease deserves to be part of that national conversation too.
Where are the
Programmes?
Where are the
Conversations?
Where is the
National exposure?
What we are asking for
We are asking UK broadcasters, journalists and programme makers to give Huntington's disease meaningful, accurate national exposure.
Daytime television
Invite families, specialists and advocates to explain the reality of Huntington's disease to a national audience.
News and documentaries
Report on the people, families, research and difficult decisions that rarely receive public attention.
Drama and soap storylines
Explore an accurately researched Huntington's storyline created in consultation with the HD community.
Radio and podcasts
Make space for honest conversations that reach people who may never have heard the name Huntington's disease.
The petition is live
Add your name. Help HD be seen.
Add your name to our call for Britain's broadcasters and programme makers to bring Huntington's disease into the national conversation, with the people who live it helping to shape how their stories are told.
Sign the petitionThis is not about one person or one family. It is not about being recognised for doing something good.
It is for the families carrying Huntington's quietly behind closed doors; for people living with the disease, those caring for them and every person living with the possibility of inheriting it. Their stories deserve to be seen.
The people behind the campaign
This campaign belongs to all of us
#TimeToSeeHD is not built around one face or one family's story. It exists to carry the voices of an entire community into places where Huntington's disease is still rarely seen, heard or understood.
People living with HD
The people experiencing the symptoms, changes and realities that television rarely shows.
Carers and families
The partners, parents, children and relatives carrying much of the impact behind closed doors.
People living at risk
Those facing genetic testing decisions or living with the possibility of inheriting the disease.
Professionals and allies
Clinicians, researchers, charities and supporters who can help this message reach further.
Founding campaign voices
We will soon invite people from across the HD community to stand alongside this campaign, share its message and help ensure that no single voice speaks for everyone.