Get Involved

Small actions can make a big difference

Huntington’s disease affects entire families, yet far too many people still know very little about it.

There are many ways you can help. You can share your story, raise awareness, support fundraising, share our films or simply start a conversation about Huntington’s disease.

Every share, every conversation and every person who learns something about HD helps bring this often-hidden disease into the light.

HOW CAN I GET INVOLVED?

You don't have to do something huge to help raise awareness of Huntington's disease. Sometimes sharing a story, watching a film or supporting someone else is enough to start a conversation.

You don't have to live with Huntington's disease to make a difference.
I Am HD Huntington's disease awareness film

Raise Awareness

One of the simplest ways to help is to get people talking about Huntington's. Many people still have never heard of HD.

Why this matters
Watching and sharing awareness films can help people understand what Huntington's can do to individuals and families. One share can reach someone who knew nothing about HD yesterday.
Developed pencil sketch for the I Am HD puppet project

Help Shape I Am HD

Follow the puppet from its first sketch to the physical character still waiting to be built, and share an idea for what might come next.

How can I contribute?
You might have an experience worth exploring, an idea for a short script, a situation I Am HD could help explain or a completely different puppet idea. Your suggestion does not need to be fully formed.
Charlie Lewis London Marathon 2027 Huntington's disease fundraiser

Support Fundraising

Fundraising doesn't just raise money. It raises awareness too. Charlie is taking on the 2027 London Marathon for the Huntington's Disease Association.

Why this matters
Every donation, share and conversation helps keep Huntington's visible. Charlie's journey is also helping more people understand why this disease matters to whole families.
Every family has a Huntington's disease story

Share Your Story

Every family affected by Huntington's has a different story. Your experience could help someone else feel less alone.

Why this matters
Real stories help people understand the side of Huntington's that statistics cannot show. Whether you live with HD, care for someone, are at risk or love someone affected, your experience matters.
Every share. Every story. Every conversation.
It all helps bring Huntington's disease into the light.