Welcome to

The HD Hub

A welcoming place for people affected by Huntington’s disease to share experiences, ask questions and remind one another that none of us has to face HD alone.

Question of the Week

Join the conversation and read what other members of the HD community have shared.

Community Voices

Share a thought, experience or message without having to tell your entire story.

Ask the Community

Submit a question that other individuals and families affected by HD may be able to answer.

Always Part of Our Story

Remember and celebrate someone whose life has been touched by Huntington’s disease.

Contributions will be reviewed before being added to the website, helping us keep The HD Hub safe, respectful and supportive.

Join the conversation

Question of the Week

Have you, or someone you care for, ever been mistaken for being drunk because of Huntington's disease?

How did it make you feel, and what do you wish people had understood before judging?

Please be respectful and avoid including private medical information.

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Your experience matters

Community Voices

You don’t have to share your entire family story to make a difference. A few honest words about living with Huntington’s disease may help somebody else feel understood and less alone.

“What is one thought, experience or message you would like to share with another person affected by Huntington’s disease?”

You may use your first name or remain anonymous. Submissions are sent privately and will only be published with your permission.

First name or write "Anonymous" *

Email address - never displayed publicly *

Your thought, experience or message *

Permission to publish *

Yes, I give permission for my words to be published on the What Is HD website. I understand that my email address will not be displayed.

What would you like to know?

Ask the Community

Do you have a question that other people and families affected by Huntington’s disease may be able to help with? Send it to us privately and it could become a future community discussion.

For example: “How have other families explained Huntington’s disease to young children?”

Questions are reviewed before publication. Please do not include names, private medical details or anything requiring professional medical advice.

First name or write "Anonymous" *

Email address - never displayed publicly. *

Your question for the community. *

Permission to publish *

Yes, I give permission to publish my question on the What Is HD website. I understand that my email address will not be displayed.

♥

Remembering those we love

Always Part of Our Story

Huntington’s disease may take so much, but it can never take away the love, memories and stories that somebody leaves behind. This is a place to remember and celebrate the people who will always remain part of our story.

Share their name, a photograph and a few words about the person you would like us to remember.

Every submission is reviewed before publication. Please only upload photographs that you have permission to share.

Your name *

Email address-never displayed publicly. *

Name of the person you would like us to remember. *

Your message, memory or a few words about them. *

Upload a photograph.

permission to publish. *

I confirm that I have permission to share these words and any photograph provided, and I give permission for them to be published on the What Is HD website.

Those We Remember

A place to honour and remember the Huntington’s warriors we have lost, keeping their names, photographs and stories alive for future generations

Visit The Tribute Page